How can I help my child with cystic fibrosis in school?

The best way to help children with CF at school is to treat them as individuals and be sensitive to their changing needs. In cystic fibrosis the lungs function normally at birth but the mucus produced in them is abnormally thick.

Can you go to school if you have cystic fibrosis?

Many patients and families are concerned about having Cystic Fibrosis and attending school. When those with CF attend school, accommodations may be helpful. Your CF team will work with you, your family and your school to make sure you are able to maintain your health and well-being while attending school.

How does cystic fibrosis affect school?

In people with CF, a defective gene causes the body to produce unusually thick, sticky mucus that can clog the lungs, pancreas, and other organs. This buildup can lead to severe respiratory and digestive problems that may warrant special accommodations in a school setting.

Is cystic fibrosis a special educational need?

Cystic fibrosis is a disability, but the level of special educational provision required can vary. It may be that it is necessary to secure additional support through a Statement of Special Educational Needs or an Education Heath and Care Plan.

Can a child with CF play sports?

Children with CF go to school and can play sports just like other kids. Many of them go to college, get jobs, marry, and have families. Your child’s CF care team is there to support you and your child. That team includes your child’s doctor, nurse, dietitian, and social worker.

What are the risks of cystic fibrosis?

People with cystic fibrosis are at higher risk of developing a dangerous thinning of bones. They may also experience joint pain, arthritis and muscle pain. Electrolyte imbalances and dehydration. Because people with cystic fibrosis have saltier sweat, the balance of minerals in their blood may be upset.

What activities can people with cystic fibrosis not do?

In general, people with CF should play any sport or game they enjoy. There are very few activities to avoid. These are scuba diving, skydiving, bungee jumping, and high-intensity activities at high altitudes. Those with an enlarged liver or spleen should avoid collision sports such as football, basketball, or soccer.

Can a child with cystic fibrosis live a normal life?

Living with cystic fibrosis varies, as each person’s body may experience different symptoms and side effects. The typical life expectancy for someone with CF is mid-30s. As treatments have improved over the years, patients with CF are now living into their 40s and beyond.

What is the oldest someone has lived with cystic fibrosis?

The oldest person diagnosed with CF for the first time in the U.S. was 82, in Ireland was 76, and in the United Kingdom was 79.

How can person prevent having children with cystic fibrosis?

The only way to prevent cystic fibrosis is through genetic counseling with your partner prior to conceiving a child.

What are the treatments for cystic fibrosis?

The methods used in treating cystic fibrosis include medications such as antibiotics, anti-inflammatory drugs, inhaled bronchodilators, oral pancreatic enzymes, and mucus-thinning medications. In addition physical therapy, pulmonary rehabilitation, and surgical procedures can be required.

What are the signs of cystic fibrosis in children?

The most common symptoms of cystic fibrosis are: Salty-tasting skin, which parents notice when they kiss their child. Frequent coughing, wheezing, or bouts of pneumonia or sinusitis. Difficulty breathing that keeps getting worse. Big appetite but poor weight gain.